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If you or your family would like to find out more about segmental overgrowth, talk to others living with an overgrowth or share your own experiences, please get in touch:

Mandy Sellars, Chairperson GoPI3Ks

email: funnypaws2004@hotmail.com

If you would like to be part of our mailing list then please send me an email with your details. I hope to be to send out newsletters periodically with news about research, patient's updated stories and further news. Thanks Mandy.


We recently sent out our first GoPI3Ks newsletter, Please link on the link below:

 

GoPI3Ks December 2014 newsletter

 

GoPI3Ks January 2016 Newsletter