Supporting patients & families living with PIK Related Overgrowth Spectrum (PROS)
MEET YOUR GOPI3KS TEAM:
MANDY SELLARS – CHAIRPERSON
Hi, I’m Mandy & I was the first person to be diagnosed with my particular PIK gene mutation. I set up the GoPI3Ks charity in 2017 to try to help those like myself living with a PIK3CA condition. I’m a big tennis fan, love horror movies & reading about true life crimes. I also love live music, my fave’s being Texas & Pink.
SUE HARPER – TREASURER
Hi, I am Sue & I am the Treasurer of the charity. I love animals, especially cats & share my life with 2 rescue cats. I spend my free time volunteering at a cat sanctuary, walking, gardening, listening to music & watching movies/TV series amongst other things. I am grateful to Mandy for asking me to play a part in the running of the charity as it is very rewarding to see the positive effect the charity has on it’s members.
AMANDA KENYON – SECRETARY
Hi, my name is Amanda & I have been friends with Mandy since meeting at university back in the 90’s. I enjoy reading & watching true crime documentaries. I love live music & have a great collection of vinyl. I’m the very proud owner of the most adorable pug by the name of Dottie.
KATIE KAVANNAH – TRUSTEE
Hi I’m Katie. I have been friends with Mandy for many years. She is one of my dearest friends. I’m here to help support her with this good cause and raise awareness. I’ve been very lucky this year as I welcomed a beautiful baby girl in April 2020. Now 7 months old she’s keeping me on my toes.